Ex-carer (lesbian) to be returned to homophobic Malawi

My ex-carer is being deported to Malawi. She’s claiming asylum as she is a lesbian; society in Malawi is strongly anti-gay, so much so that last year the government introduced a new law specifically against lesbianism. She faces returning to a forced marriage to an abusive husband, and lifelong denial of her sexuality on threat of State or community punishment. The Home Office are refusing to believe her. Please do sign this petition.

CQC lie about their competence

The Care Quality Commission (CQC) has come in for somewhat of a bashing recently. But I didn’t think they would lie as well.

In response to a recent documentary exposing care home abuse, CQC said the following in their media statement:

CQC carries out an unannounced inspection of every care and nursing home in England every year – more often if we believe people may be at risk. This system of regulation can and does identify poor care which CQC then takes action to tackle.

What?!

A quick look at the five care homes I’d stayed in in the last year revealed last inspection dates as follows:

  • Summer 2010 (in response to a specific incident, last “proper” inspection November 2007)
  • January 2009
  • November 2009
  • February 2011 (in response to specific allegations)
  • December 2009

Not one was inspected in the past 12 months. 0%.

Personal experience with looking for care homes for a relative confirmed the impression that most care homes have gone well beyond 12 months without an inspection.

I smelled a rat. So I asked CQC how many homes it had indeed inspected. The response came. Answering a slightly different question, CQC admit they did 13,082 inspections of care homes over the last 12 months. There are 17,756 care homes. So at least 26% of homes didn’t get inspected. I say “at least” as where CQC identifes problems at a care home they conduct more than one inspection. (hence why I think their FoI response is disingenuous.)

Let’s look at these once again.

  • “CQC carries out an unannounced inspection of every care and nursing home in England every year – more often if we believe people may be at risk.”
  • Of the 17,756 English care homes, CQC did 13,082 inspections over the last 12 months.

Is it me, or do the figures not add up?

Where did this come from?

The sad thing is we always knew CQC would be an appalling, incompetent mashup.

It was formed from a merger of the Healthcare Commission, the Commission for Social Care Inspection (CSCI) and the Mental Health Act Commission a couple of years ago. Having worked with CSCI, who were at least trying to do things right, me and other service users raised the concern that it would follow the sad precedent of the subjugation of disabled people’s rights following the Disability Rights Commission being subsumed into the Equality and Human Rights Commission. Sadly, we were right. Our concerns that social care would always be lower priority than healthcare were realised.

It didn’t help that the new body was given new, overarching registration standards. These same standards applied to all bodies registered – from acute hospitals, to dentists and care homes. The result being the emphasis on residents rights was lost, and the regulations simply weren’t specific enough for the situation. We lost rights in the change.

Then CQC sacked 70% of its inspectors so that it could register dentists. They adopted what they acknowledge as light touch regulation. They ceased grading care homes, and largely stopped inspecting them. The majority of care home reviews became based on self-declaration by care home managers. Inspections became very rare. Now, precisely which poorly performing care homes would state this to the regulator do you think?

Abuse

All this came to a head during the very sad and distressing Panorama documentary of the systemic abuse of people with learning difficulties at Winterbourne View. CQC became a very public whipping boy, held accountable for a lot of what happened. Much criticism resulted, including a select committee and the PM criticisng CQC for reducing inspections. Many made a comparison with the seminal Silent Minority documentary exposing the “care” of people with learning difficulties in institutions in the early 1980s. (Documentary available to view online – very distressing too.)

Meanwhile, there’s been blood on the carpet and accusations of gagging orders on staff etc. CQC has become a toxic brand. It’s been desperately attempting to reinvent itself, so far (in my view) failing miserably.

Consequences

If it wasn’t so serious, this would be funny. The reality is, though, that people are suffering as a result of this disgusting shambles. Care home residents are some of the most vulnerable, most disadvantaged, most disempowered people in this country. Abuse is the norm, not the exception in my experience; it just varies in degree. Without an effective regulator, the thousands of people in care homes up and down the country suffer even more abuse, poor treatment, curtailment of life opportunities.

CQC are ineffective, stuffed up, an ineffective regulator who lie about themselves to try and stop the torrent of legitimate criticism aimed their way. They are beyond redemption and need replacing.

(With grateful thanks as always to the wonderful Crippen for his inciteful cartoon 🙂

The Voice of Disabled People?

Amongst the various other things that annoyed me about yesterday’s shameful treatment of disabled people courtesy of the Lords (et tu, Lib Dems?) was a vomit-inducing self-congratulatory homily by Lord Low, who spearheaded this (admittedly influential) report on the withdrawal of mobility allowance for people in residential care.

Readers may remember that this nasty proposal was born out of invented assumptions that people in residential care have all their mobility needs met by their funding authorities, that they are similar to people in acute hospitals who don’t have mobility needs and (we suspect) due to an assumption that this seldom-heard and severely disempowered group would be unable to defend themselves. Others cynically (though perhaps correctly!) suspected this was the sacrificial clause designed to enable the Government to save face on the remainder of their cripple-kicking, disempowering, undemocratic and lying Bill.

Disabled people were naturally incensed. People from all sorts of backgrounds put in a huge amount of effort to point out the “inaccuracies” in the assumptions inherent in the proposal, and the dramatic negative effect this would have on residents’ lives. Some examples include Bendy Girl’s radio interviews, my oral and written evidence to the Joint Committee on Human Rights (PDF file), and our home’s residents who got our MP to visit to correct his assumptions and to raise our concerns. And these examples are a drop in the ocean compared to the huge amount of effort put in many different ways by a lot of disabled people to make the Government change its mind.

Yet in this extraordinary speech (with supposed false modesty!) Lord Low claims responsibility for the U-turn on behalf of the secretariat (provided by two charities for, not of, disabled people) and the other half for Members of Parliament’s common sense! Shamefully, he made no mention of the work done by disabled people up and down the country to overturn this odious proposal.

There is more joy in heaven over one sinner that repenteth than over 99 just persons who need no repentance. For that reason, I greatly welcome the Government’s decision to drop their proposal to withdraw the mobility component from those living in residential care. I have been given some credit for bringing this about with the review that I was asked to lead by Leonard Cheshire Disability and Mencap, but I think, in all honesty, I must disclaim this. Half of that is because I had a very good team working with me, supported by an extremely able and hard-working secretariat from both organisations; and half because I think Ministers, to their considerable credit, largely came to their decision of their own accord. Perhaps I may have provided a little cover for a U-turn-if so, I am glad to have been of service.

Pass the bucket.

Lord Low, as a disabled person himself, should be ashamed for continuing the traditional disempowerment of disabled people by continuing the enforced misapprehension that they cannot speak for themselves, that their words and actions don’t have power, that other people can more effectively speak for them. His lack of acknowledgement of disabled people’s actions yesterday is a breathtaking rebuff of the Disabled People’s Movement.

I know I shouldn’t be surprised as this sort of behaviour is by no means new. After all, as ex-chief of the Disability Rights Commission Bert Massie says, we shouldn’t expect publicly funded charities that act as proxy providers of public services to bite the hand that feeds them. (I’m looking at you, Leonard Cheshire Disability and Mencap, who provided such vital secretarial support to the Low report.)

He pointed to the “superb” Responsible Reform report – published this week by disabled activists – which accused the government of misleading parliament over disability living allowance reform, as a demonstration of why the voluntary sector’s independence was so important.

He said that any charity that decided it was unable to produce such a report because of the risk of annoying the government had immediately been “compromised” by signing a contract to provide services.

But Lord Low’s speech is such an inexcusable, self-congratulatory, brown-nosing, odious homily to disabled people’s disempowerment, I couldn’t resist this rebuttal.