Dec 182014
 

I appreciate and am truly humbled my the support offered and given freely by so many people and organisations (in particular disabled peoples’ organisations). I welcome non-partisan parliamentary support for this issue.

I wish to make it clear, however, that there are certain groups whose politics and behaviour is such that I have profound idealogical concerns about working with them. Whilst they are free to access any of the information I have put out, and I cannot control what they do with it, I will not work with the BNP, the EDL, UKIP or allied parties. Hence anything with such organisations’ stamps on is not sanctioned by me.

Doug Paulley

Dec 112014
 

equity-vs-equality

(With thanks to the Becoming Radical blog for the image.)

If and when we win the case in the Supreme Court, I think we should rename the Equality Act to the Equity Act.

A lot of people seem to be talking about Equality between non-disabled pushchair users and wheelchair users. That may be Equality, but it’s not Equity.

Equal rights of access to the wheelchair space on buggies means I sometimes can’t travel – whereas pushchair users have the option of folding their buggy and traveling if I’m in the space. Particularly if they use sensible buggies, slings for newborn kids, etc. etc.

Dec 092014
 

spaces

  1. Some car parks don’t have any special spaces, they only have “Normal” spaces. They can be very difficult or impossible for disabled people to access.
  2. Some car parks have Disabled Access (“Blue Badge”) spaces. They are specially designed and located to make it possible or easier for some disabled people to use the car park.
  3. Some car parks also have “Parent and Child” spaces. They are specially designed and located to make it easier for people with young children to use them.
  4. When a parent with young children uses a car park that only has “Normal” and “Blue Badge” spaces, they are generally not permitted to use a “Blue Badge” space. They have to use a “Normal” space. It’s not as easy, it’s a pfaf, but it can be done.
  1. Some buses don’t have any special spaces, they only have “Normal” seats. They can be impossible for some disabled people to access.
  2. Some buses have a “Wheelchair” space. They are specially designed and located to make it possible for wheelchair users to use them.
  3. Some buses also have “Buggy” spaces. They are specially designed and located to make it easier for people with young children to use them.
  4. When a parent with young children uses a bus that only has “Normal” seats and a “Wheelchair” space, they are generally permitted to use the “Wheelchair” space. They could use a “Normal” seat, unless disability prevents them. It’s a pfaf, but it can be done.

If the wheelchair space on a bus is in use and isn’t vacated… no wheelchair user can get on.

Dec 082014
 

At 9.45am Judgment was handed down in my case against First Bus Group. It was immediately appealed to the Supreme Court.

Unfortunately for our many supporters, to whom I am truly grateful, it’s us that are doing the appealing.

The Judgment will be available here shortly, as soon as I can get a final copy. In the meantime, you can see our Application for Permission to Appeal to the Supreme Court.

If you’re a wheelchair using passenger, then you can be happy that the decision is already good enough to improve your rights. If your bus company operates an “ask only” practice to clearing the wheelchair space then they will have to change it, or risk being sued for damages.

Lady Justice Arden has set out what she believes would be reasonable adjustments for bus companies to have to make to ensure access for wheelchair users:

1. The bus company MUST provide training for bus drivers and devise
strategies that drivers can adopt to persuade people to clear the wheelchair space. She even suggests drivers could decline to drive on for a short while.

2. They should run an awareness campaign to educate passengers of the needs of wheelchair users.

3. They should put up notices designed to make passengers more aware of the
needs of wheelchair users.

4. Conduct surveys to find out when people are likely to travel and what
their needs are so that they can do whatever they can to provide an
appropriate number of buses for everyone.

5. Consider changes to bus design, such as more fold-up seats or a space for folded buggies.

This is great….

BUT, there are two reasons why we’ve got to push on to achieve more.

Firstly, as a matter of fact, Firstbus don’t make those adjustments and provided no evidence to suggest they weren’t reasonable adjustments, so my case should have been upheld instead of overturned.

Secondly, we remain committed to the principle that if it’s fine to have someone thrown off the bus for eating a kebab, or committing a general nuisance, then it’s both practical and legal to enforce the principle that disabled people who can only travel in the space designed and designated for wheelchair users have an absolute right to occupy it over non-disabled people.

Firstbus said that they were appealing the decision for ‘clarity’. Ironically this decision creates a mess. We have a Judge in Leeds telling us that Parliament intended that disabled passengers should have priority, and we have appeal Judges in London saying that only rules specifically made by Parliament can allow bus companies to remove their passengers from the wheelchair space.

If Firstbus are serious about seeking clarity then we invite them to agree that the case should proceed to the Supreme Court for the final say.

I am both disappointed and pleased at the same time. I hope to have this finally sorted in the Supreme Court.

I would like to thank those from Transport for All who have supported me so consistently, the many disabled and non-disabled people who have also offered invaluable support, also my excellent, award-winning lawyers Unity Law and world renowned expert counsel from Cloisters chambers.

Appeal Court Judgment

Press release

The battle isn’t over yet.

Nov 092014
 

Leeds City Council decided to hold Grayson’s tapestry exhibition in Temple Newsam, a venue largely inaccessible to wheelchair users. People protested as a result.

The Council’s Equality Impact Assessment claimed that a primary reason was the unavailability of the venue on the dates set by Grayson’s representatives. Yet correspondence just released shows something different…

From: Douglas, Caroline [mailto:Caroline.Douglas@southbankcentre.co.uk]
Sent: 30 October 2012 12:38
To: Walsh, Nigel
Subject: RE: Grayson tapestries

However, if we were to go ahead with the notion of a showing at Temple Newsam, would you be able to say when this would be best fitted in to your programme? Loosely?

From: Douglas, Caroline [mailto:Caroline.Douglas@southbankcentre.co.uk]
Sent: 05 November 2012 14:50

Having now had responses from almost everyone about possible dates for showing the tapestries at your venues, I tentatively suggest a tour that looks something like this:

Sunderland end June – end September 2013
Manchester mid October – late November 2013
Qatar December – January 2013/14 (with British Council)
Birmingham mid February – early May 2014
Liverpool late May – late July 2014
Leeds August – October 20

From: Walsh, Nigel
Sent: 06 November 2012 10:39
To: Douglas, Caroline
Subject: RE: Grayson Perry tapestries tour

Hi Caroline

Is there any reason why Leeds (TN) are at the end of the tour?
We can be flexible about dates as it’s a question of accomodating them in a room display/s. In the meantime I’ll run this date past Bobbie who is Keeper there.

Nigel

Nigel Walsh
Curator; Contemporary Art
Leeds Art Gallery

From: Douglas, Caroline [mailto:Caroline.Douglas@southbankcentre.co.uk]
Sent: 06 November 2012 12:30
To: Walsh, Nigel
Subject: RE: Grayson Perry tapestries tour

Hi Nigel

The only reason I’ve sketched you in at that point is because, while you indicated the interest in showing the tapestries at Temple Newsam, you didn’t say when you would be able to programme the show.

And I’m afraid your colleagues at our other Collection Partners did.

So it is clear that:

  1. Leeds City Council chose the venue before even attempting to discuss potential dates with Grayson’s representatives.
  2. Grayson’s representatives asked the Council which date they wanted, but the Council didn’t respond to this question.

Yet the Equality Impact Assessment says:

For the only exhibition slot made available to Leeds, The Art Gallery and City Museum were not available or not able to accommodate the specific space / conservation requirements of the works

Hmmm. I smell a rat. Clearly something doesn’t add up?

Leeds City Council: please investigate this as a complaint. The Equality Impact Assessment is misleading at best.

Sep 132014
 

DPAC have been served with a Cease and Desist letter from a healthcare provider after they published details of how a disabled man in Ireland has been treated. I am reblogging their recent post in support of them.

DPAC has removed our most recent piece on Anthony Kletzander from our website due to a ‘cease and desist’ letter from solicitors representing Nua Healthcare threatening legal action against us for raising awareness of the case. DPAC have published pieces on Anthony and his situation since late 2013. We firmly believe that Anthony’s desire for independent living, instead of institutionalisation should be upheld, as per Article 19 of the UN Convention on the Rights of Persons with Disabilities. We also believe that we have a duty to raise public awareness on Anthony’s experiences.

We will continue to campaign and to support Anthony, his parents: Linda and Sigi and his chosen advocate Joe Whittaker in any way we can. Anthony’s parents Linda and Sigi kindly agreed to an interview from their home in Ireland. We are grateful for their time and honesty.

Interview
As you may know supportive web sites and grass root disability groups in the UK and Europe received a solicitors ‘cease and desist’ letter regarding talking about Anthony’s circumstances, we can not talk about that specifically, but as Anthony’s parents and his legal guardians-what are your thoughts on:
 
a) the suggestion of the protection Anthony’s ‘confidentially’ :what has Anthony said to you on this, what is it that he wants to say about his circumstances? And as his parents what is it you would like to say?

Anthony repeatedly asks us to get him out of Nua and that he wants independent living in his own home near to his family. We fully support Anthony and take our lead from Anthony. He wants us to do whatever is necessary to help him to get back to independent living

BxRwyjuIQAAiqT3twitpic

b) We understand that Anthony’s chosen means of communication has been denied, can you tell us a bit about that?
Despite the fact that Nua were given Speech and Language reports from two Health Service Executive (HSE ) Senior Speech and Language Therapists, Speech and Language report from Central Remedial Clinic Speech Therapist and Marion Stanton communication expert in U.K no staff at Nua are trained up in his communication  Marion offered to come to Ireland (in March 2014) to train Nua staff, but Nua did not invite her over in fact Noel Dunne said on the phone that they would get their own experts.

IMG_0030

2.Anthony lived in his own flat with his own personal assistants for almost 3 years – why do you think it is proving so difficult for Anthony to exercise his right to independent living by living in a place of his own choosing now?
 

Having had independent living from 2010-2012 with Cheshire Ireland where Cheshire took a back seat, we recruited Anthony’s staff with Anthony, put together a schedule which Anthony helped in planning and we negotiated with Dublin City University (DCU) and Anthony attended DCU lectures which is something he always wanted to do. In 2013 Anthony service was given over to Áiseanna Tacaíochta Network (ATN) by HSE with no meaningful negotiations with Anthony or us, no explanation was given. Martin Naughton the Director of ATN carried out the negotiations with Geraldine Murphy HSE Disability Manager. Martin then imposed his staff on Anthony, none of which believed in Anthony’s communication and Anthony’s whole quality of life suffered a great deal under the service of ATN. Martin tried to dictate visiting hours for Anthony, restricted his movement. Basically we had to go to Anthony’s home every evening to take Anthony out as he was effectively under virtual house arrest. Martin also applied to the Dept of Social Protection to have Anthony’s personal disability allowance payment paid into the ATN company. Following Martin’s email we contacted the department objecting and it took about a year to sort out the stoppage of Anthony’s payment due to ATN’s actions.

AKlightwriterBxWMSK7IAAAXZuL

3.What does Anthony say to people fighting the campaign to get him independent living?

Anthony continues to ask us to keep the campaign going. He also appeals to us to ask Nua to stop the forced medication on him. Anthony has know Joe (Whittaker) for about 11 years and always asks us to ask Joe to continue the campaign for him.  We always reassure Anthony that Joe and we his parents are continually campaigning and won’t stop until Anthony is released to Independent living. We need to keep repeating this to Anthony to try to help him to survive his time with the Nua institution

4 What efforts have HSE made to discuss Anthony’s wishes for independent living with you and Anthony?
 
Possibilities Plus offered HSE their service to provide Independent Living. Geraldine Murphy has told them that as far as she is concerned the Nua arrangement is permanent.  We continue to write to Sheila Marshall the other Disability Manager involved.

5.Who do you recognise outside the family as closest to Anthony and who has Anthony chosen as an advocate?
Anthony chose Joe Whittaker as his advocate and we keep Anthony informed about the campaign. We Anthony’s parents feel encouraged and very appreciative of Joe’s on going support. We are all grateful that many more people know what is going on and we really appreciate all the support that Anthony is being given by growing numbers of people.

6.Prior to Anthony being institutionalised did Anthony have a history of hospitalisation

No, prior to ATN taking over the management of Anthony service, Anthony was on a strict gluten and dairy free diet. He was not given ANY medication but took natural supplements. When ATN took over Anthony’s service ATN stopped Anthony’s special diet against the advice of the family doctor claiming that they found him to be “often hungry”. This caused Anthony pain and subsequently contributed to his virtual “house arrest”.

7.When did forced medication start for Anthony

Anthony was medication free when he entered Redwood ( a prior institution). However three days after he entered Redwood we got a phone call confirming that Anthony’s crucial special gluten and dairy free diet was not being adhered to by Redwood and that they were giving him medication.

8.Did Anthony have a history of being hospitalised prior to being institutionalised

No. Despite the fact that we gave Redwood Anthony’s GP letter and met with Management when we were told that Anthony was been given medication and that his diet was not adhered to. Anthony was hospitalised by emergency ambulance with seizures for the first time in his life. Tests showed no epilepsy.

9.Did Nua continue with the drugs regime

When Anthony started in Nua he was not drugged according to our information. However in March 2014 Anthony was admitted to hospital by emergency ambulance. Since Anthony started in Nua he has been admitted twice to hospital by emergency ambulance and continues to be medicated.

10.Did Nua give you the list of Anthony’s medication

No despite the fact that we repeatedly asked Nua for the list of Anthony’s medication they refused to give it to us. We finally got the list of medication when our solicitor requested the medication list from HSE when Sheila Marshall, Disability Manager issued the medication to our solicitor so we then had access to this crucial information.

11.How does Anthony spend his weekdays

When Anthony started at Nua we attended a conference explained the significance of training for staff of Anthony’s communication. We also told everyone who attended the meeting from HSE and Nua that Anthony hates farms.  He attends the Nua farm daily where we recently witnessed Anthony shovelling manure into a wheelbarrow in a highly distressed state and being told “good boy keep going”. Anthony is a 26 year old man not a “boy”.

photo anthony

12.How did Anthony appear on your recent visit to him on the Nua farm

When we drove into the car park we could hear Anthony’s anguished sounds and rushed to find him. We were shocked to see him shovelling manure into a heaped wheelbarrow. Anthony’s anguished sounds increased significantly whilst bringing the heaped wheelbarrow down the very steep hill to the lower Nua gardens. We emailed Nua voicing our concerns but received a registered letter from Nua yesterday informing us that Anthony has been returned to the farm as of 8 September 2014 so we continue to worry significantly about Anthony’s health and safety in Nua.

13. What would you say to parents/people in a similar situation to that of Anthony?

We would say never give up. Everyone is entitled to be listened to, no one’s basic human rights should be abused. We would encourage people to speak up if they can.

14.What would you and Anthony say to the people supporting Anthony?
Anthony is continually thanking people for their support which he needs to stay strong. Anthony is particularly grateful to his and our friend Joe Whittaker

Video of Anthony typing thank you to supporters

 

If you can help please contact Anthony’s chosen advocate Joe: whittakerjoe5@gmail.com

Abbreviations

ATN Áiseanna Tacaíochta Network
DCU Dublin City University
DPAC Disabled People against Cuts
HSE Health Service Executive: responsible for the provision of healthcare providing health and personal social services for everyone living in Ireland, with public funds.

Mar 142014
 

investment-small-1I just put in a complaint to Leonard Cheshire Disability (LCD). (Out of character, huh.) It is as follows:

…”Inter alia, you explained that the home is having difficulty recruiting carers and that carers and good quality carers are not applying for our posts.

I volunteered the opinion that whilst we are lucky in that many staff working for us do so despite the poor pay (as staff provide excellent service through a commitment to ensuring good quality of life for service users, despite the poor pay), we may have more success in recruiting and retaining decent staff if we offered the Living Wage. Given how much residents pay per week, I think it should be entirely possible for the home to pay carers the Living Wage.

The Living Wage is an initiative intending on reducing poverty in the UK. It has high profile, non-partisan support. As well as being morally right, it has important benefits for employers. Here are some benefits. An independent study proved that 80% of employers believe that paying the
Living Wage enhanced the quality of staff work, reduced absenteeism by 25% and that two thirds experienced improved recruitment and retention.

I want some of that. I want less absenteeism, easier and better recruitment with more and better quality applicants, and better retention. I think it would make a major difference to residents’ quality of life and experience of the service.

The Living Wage is currently £7.65 per hour outside London.

I can’t find any job adverts for Wharfedale, but for the next nearest care home (Champion House), there is currently a vacancy for a care assistant offering £6.31 per hour basic (i.e. the Minimum Wage) plus 25p per hour for relevant qualification in health and social care plus 20% enhancement for nights/weekend working. I.e. £6.31 per hour, rising to £6.56 for the NVQ for daytime work. This is just 82 to 86% of the Living Wage.

Wharfedale House (care home I live in) should be able to afford to pay the Living Wage.

The Telegraph reported in November:

On average, in England, the cost of providing residential care, including the care home operator’s slice of profit, is worked out at £563 per week

(Of course, being a charity, the profit doesn’t apply to us.)

Breaking this down more regionally, according to this not-for-profit company, the average charge for placements in non-nursing care homes in Yorkshire for
2012-2013 was £463 per week.

I know that currently Wharfedale House is paid £986 per week for my care. This is by no means out of character for the fee in the home: in June 2012, Leeds City Council indicated (PDF) that the median fee paid by them for placements at Wharfedale House was £840.08.

To pay carers the Living Wage would require an increase in the wage bill of approximately 20%. Yet going by the above median fee, Wharfedale House charges 80% more than other care providers. Unlike private sector care providers, Wharfedale House doesn’t make a profit. We should clearly be able to afford to pay carers 20% more than the minimum wage.

I would like to raise a formal complaint that we do not pay our carers the Living Wage. Failing to do so devalues and dehumanises those who provide the most difference to our everyday lives: those who provide residents’ personal care and support. It has a consequent effect on our care as it affects our ability to recruit and retain decent carers. This has a direct consequence for the experience of service users such as myself.

I will not accept any argument in response to the complaint that states that LCD pays in line with industry standards, or that Wharfedale isn’t out or the ordinary, or that LCD can’t afford it. The fact that the rest of the industry also undervalues and devalues carers should have no bearing on our ability to “break the mould” by paying more. We should be setting a standard.

I will also not accept any argument that we cannot afford it; for the above reasons, but also because the residents are not involved in the budget setting process for the home, nor are we even informed as to how our fees are divided up and spent. There is no transparency.

By way of resolution to my complaint, I would accept and expect the following:

1) 20% increase in the rate of payment for care assistants / support workers

2) Should LCD refuse that, that Wharfedale House leave Leonard Cheshire Disability (who after all don’t own the building) and move to another provider who can provide the same or better service at the same or lower cost and with 20% increase in carers’ wages.

I am convinced that if LCD claim they are unable or unwilling to provide the increased wage, third party companies would be able to do so whilst providing the same or better level of service, the same or better staffing levels and a profit for any shareholders, without increasing the fee. This would be of significant benefit to Wharfedale House employees and service users.

I am also convinced that the benefits brought about by the improved pay rates would more than make up for the loss of any perceived benefits of being part of Leonard Cheshire as an organisation; and that leaving LCD would also have many other benefits for the home, its staff and its residents.

Thank you

Doug Paulley

 

I won’t hold my breath.

Thanks as ever to the most excellent cartoonist, Crippen

Mar 092014
 
cartoon by Crippen

Mark Sanderson has left.

This is the guy who tweeted “It’s albinism not albinos, dummies” in response to a media article, after being appointed Head of Quality Improvement at Leonard Cheshire and whilst still working for Mencap. When I tweeted a challenge to him using the word “dummies” as a pejorative, he complained to his bosses, saying that he found this as unwanted and unwarranted harassment, that other staff have experienced similar and that staff should be protected from me.

His boss initially supported him, agreed that me following him and challenging him on Twitter (where he’d publicly identified himself as HoQI at Leonard Cheshire) was inappropriate and asked for (and received) permission to show the Chief Executive, but eventually made him send a weasel worded apology when I kicked off. They wrote it, and then he watered it down till he could “live with it”. Following which he deleted the tweet then denied ever making it.

Eventually, following an investigation into the handling of my complaint about his reaction to my tweet and the subsequent critical report by Leeds City Council, LCD was forced to apologise.

I must say myself and other social care service users haven’t noticed social care quality provision by the charity improve whilst he was Head of Quality Improvement (for less than two years.)

Linked In still has him down as “Successful Strategic Manager” working at Leonard Cheshire Disability. I just hope that wherever he is working, he’s got more commitment to service users, integrity, honesty and professionalism than he demonstrated with me whilst working at Leonard Cheshire.

Thanks as ever to the most excellent cartoonist, Crippen

May 082013
 

Many here will know that I am a train fan, also that I’m a wheelchair user, and sometimes the two don’t mix. I have a family funeral at Enfield Crematorium in a couple of weeks, so I needed to book train travel. I thought I would list what happened as I tried to book train travel this afternoon.

I have had confidence issues with public transport for the last year, just starting to use trains again. I’m sure you can understand that I needed this to go as smoothly as possible.

  1. I looked up train times yesterday (preparatory to booking a carer.) If I was non-disabled it would be simple: train from Leeds to London, underground to Seven Sisters, train to Turkey Street, which is right next to the crematorium. All done online, no problem – information, tickets booking, everything.
  2. I’ve done Leeds to London many times, so I know that is accessible (when the assistance turns up). But I don’t know about Sevenoaks or Turkey Street. So I went on the National Rail Enquiries website to see station facilities for Turkey Street. My heart lifted:

    Step free access coverage: Yes

    But what’s this either side of it?!

    Ramp for Train Access: no. Step Free Access note: no

    This station says it has step-free access. But what does “Step Free Access note: no” mean? And this station truly has no ramps?! That makes no sense. Sigh. I would obviously have to check that out.

  3. Next step: what about Seven Sisters station? I checked the step-free access guide – bummer. No access. So what to do? I used the TFL Journey Planner specifying step free access. I don’t trust the buses in London having previously had journeys take longer than they should have, so I unticked that option too. It told me to catch the underground from Kings Cross to Liverpool Street and change there. Good.
  4. Onto the phone (which I hate.) As my first train will be operated by East Coast, I phoned their assisted travel line. Having got through their “Press X” and “Press Y” phone system and queue, I told the assisted travel operator I want tickets and assistance for a journey. She explained if I want both together, that’s from a different department which is short-staffed, but that she would try to put me through. I was on hold for a while, then I spoke to a man. I explained my journey and asked if Turkey Street is accessible? He too was confused. He said the various information available to him was contradictory. He suggested booking the tickets and assistance then phoning Greater Anglia who own Turkey Street station. I thought this wasn’t very helpful and suggested instead that I should book the whole thing through Greater Anglia. He agreed and supplied their phone number.
  5. I phoned Greater Anglia assisted travel. After a long period on hold, I spoke to a very helpful woman. I enquired about Turkey Street Station’s wheelchair access. Much consternation; she looked it up on the National Rail Enquiries website, which said it is fully accessible, but also consulted a map of the station, which shows access only via steps! She was at somewhat of a loss. She noted the station is only manned until lunchtime, and asked if she could arrange for herself or a colleague to phone back tomorrow when it was open, to confirm? I explained that this wasn’t appropriate as I need to make firm bookings for carers, transport this end and so on, for a family funeral. She said she would phone customer relations and get back to me.
  6. She phoned back quickly. She confirmed for definite that Turkey Street is definitely not accessible for wheelchair users. She said that the information on the National Rail Enquiries website is incorrect; that she doesn’t know why, but that this information is maintained by a different company.
  7. She said that the only option for travel is that the company will book a taxi from the nearest accessible station. I asked which is the nearest accessible station? This information, of course, should be on the National Rail Enquiries website – but it isn’t; and even if it was, I don’t think I could be trust it.
  8. Herein a problem. We were both reduced to consulting maps, looking up individual stations on the National Rail Enquiries website etc. because it transpires that Greater Anglia (who run trains solely in East Anglia and from there to London) have situated their assisted travel service in Scotland. With the best will in the world, therefore, her local knowledge is limited.
  9. I noticed the National Rail Enquiries website indicated that Enfield Lock station (half a mile from the crematorium) is accessible. She checked on her map of the station – and joy of joys, yes it is! There’s a level crossing enabling level access to both platforms. Problem solved – or so I thought.
  10. She raised another problem. Enfield Lock station is only manned (as National Rail call it) until lunchtime. So there will be nobody available to put down a ramp for me to get on the train for my return jouney. Surely not a problem, said I in all innocence, the guard can put down the train’s ramps. Not so. She went off to consult a list, and came back to tell me that – like many of their services – this train does not carry ramps.
  11. This is utterly extraordinary. I’ve never heard of this before. I’ve had all sorts of problems on trains:
    • being left on a train that wasn’t fully in the platform so that “my” door wasn’t next to the platform and couldn’t be opened (and unlike people who can walk I couldn’t get up the train to another door!)
    • being put in the guards van (don’t RIP Connex South Eastern!) or stuck in vestuble areas as doorways were too narrow for me to get through
    • the wheelchair space being occupied by prams, pushchairs, luggage and even on one memorable occasion a jazz band
    • many instances of booked assistance not turning up

    But trains not carrying wheelchair ramps? That’s a new one on me. Utterly unacceptable.

  12. By now I was losing the will to live. To give her her due, this (very pleasant, diligent and helpful) woman wasn’t for giving up. She worked something out. For the outward journey, she would sell me a ticket to Enfield Lock and arrange all necessary assistance (except with the London Underground connections, I have to book that separately of course.) For the return, she would sell me a ticket from inaccessible Turkey Street station.. The railway company will then be obliged to supply a taxi from that station into London to enable me to catch the Leeds train. She will confirm this today or tomorrow, as the assistance department doesn’t have permission to book taxis – this has to be given elsewhere in the company.
  13. This indefatigable woman then booked my assistance and tickets with me, took the money and gave me all the relevant details and reference numbers. She was briefly foiled by their address system which refused to accept the length of my home’s name, but I suggested a way round that. I insisted she gave me the reference numbers; she said that the ticket collection reference should be emailed to me, but I didn’t want to risk it not coming through. (I’m glad I did insist as the number didn’t come through on email. Lol.) So now I just have to wait for the phone call confirming the taxi booking. Also, of course, to phone and book assistance on the Underground.

All in all, that was two hours on the phone. On top of that, I have done lots of looking up trains on the Internet, checking of individual station facilities, working out accessible tube travel etc. etc. On top of which, I have to arrange a one to one carer (my usual one being unavailable that day), book wheelchair accessible transport from Leeds to my home etc.

I had gone to bed this afternoon, feeling ill after a bad night, and intended on going to the theatre with friends this evening. However I was awake all afternoon dealing with this, and now I don’t feel well enough for the theatre. I have had to stand my friends up. In the process, I’ve also got blooming frustrated!

Now any non-disabled person in a similar situation could have gone on the first website, looked up train times and booked the trains all in one go in perhaps 10 minutes flat. Just because I am a wheelchair user (actually, just because the various train companies aren’t geared up for wheelchair users!) that process took me hours.

It could have been worse. Imagine what would happen if I had (quite understandably taken the National Rail Enquiry website at face value and assumed the nearest station actually is accessible? I would have just booked the tickets and assistance to the inaccessible station, then on the day I’d have turned up at the destination, unable to get off, and probably missed the funeral!

Is this equality?

May 062013
 

OK not political, FoI or Disability related for once.

I’ve been busy recently writing two Weather websites. The first, Wetherby Weather, started from a bargain basement purchase of a weather station on eBay. Using Cumulus and various utilities written by generous and talented third parties, that data is put on the Web – realtime and archived – as well as being supplied to various weather networks round the world. I log wind direction and strength (average and gust), also temperature, barometric pressure and humidity.

What do most people look at weather websites for, though? The forecast. The best I could achieve with that was the Zambretti automatic short-term weather forecast. That’s reasonable for a few hours, if a little less than descriptive – but not much more than that. I linked to the Met Office forecast – but ideally wanted to produce my own.

WXSIM fits the bill perfectly. It’s just been adjusted to work with Cumulus. It is customised for Wetherby. It takes aviation weather data, meteorological station, weather buoys, ozone measurements, data from regular weather balloon soundings and the outputs of the global forecast system. Starting with the current and historical data from my weather station, and using carefully tailored internal algorithms, it models various elements of the weather over the next few days.

It models temperature, dew point, precipitation, barometric pressure, wind direction, strength and gusts at various levels, advection, soil moisture, Ultraviolet radiation, visibility, wind chill, humidex, evapotranspiration, cloud cover at five atmospheric levels, and other things beyond my ken, to produce a detailed and accurate weather forecast.

I perform some manual forecasts; then my system runs the model and updates the forecast 8 times a day automatically based on the decisions I made in my last manual run.

The detailed forecast is then uploaded and is available on the Wetherby Weather website. It’s also available on the iPhone / Android Wetherby Weather site, as a daily email from the free Wetherby Weather mailing list, via the Wetherby Weather Twitter feed and the Wetherby Weather Facebook profile. I also upload photos, and commentary on any unusual weather events happening in Wetherby.

Then I went away. There’s a fabulous place I go regularly; a disability respite and outdoor activity centre on Kielder water. It sounds trite but the Calvert Trust Kielder has changed my life. It’s made me aware of what can happen with a staff and organisational “can do” attitude and atmosphere; as opposed to some less helpful attitudes from other organisations I could mention. It’s been a challenge and a comfort over the past 10 years; a genuine respite – particularly during the shameful abuse and eviction attempt by Leonard Cheshire..

I ruminated that finding an accurate forecast for Kielder is difficult. A decent, customised forecast for Kielder would be invaluable. With my recent experience with Wetherby, I knew that I could set up a forecast for Kielder. So I did. See the Kielder Weather website and Kielder Weather mobile site, also the Kielder Weather Twitter feed and Kielder Weather Facebook profile.

The Calvert Trust Kielder feature my forecast on their homepage, and published a news article about my forecasts.

So what now? I archive both sets of forecasts and will be tweaking them against actual data observed – though this is proving somewhat difficult to obtain for Kielder. I am hoping to increase the accuracy of my forecasts.

I’m in the middle of an Open University course on meteorology (having got an existing degree in Earth Sciences and IT through them). No doubt that will inspire me further in new directions!